Patients Know Best

You can access your PKB record from any smartphone, tablet, or desktop device. There’s no need to update your device or install new software. Simply use your web browser to log in at my.patientsknowbest.com. You can also access PKB via the NHS App. Either you (or your carer) will need regular internet access to receive your correspondence and to access all the features.

Yes. you can only use one unique email address per registration e.g. you can’t use a family shared email if your family/friend already uses that email for their PKB account.   If you are registering via the NHSApp, it will automatically use the email address associated with that account.

No, this will not affect the care you already receive from us. Instead, it’s designed to improve your care and experience, help you to be more involved in decisions, get better explanations from us, and give you the tools to manage your care safely at home.

Patients Know Best is hosted within the NHS network, so it’s just as secure as the information we as a hospital hold about you. We chose this system because it meets the stringent NHS requirements for health record systems and is fully compliant with the Data Protection Legislation 2018. All personal and health information is encrypted (or coded), with PKB only having access to your NHS number. This means only you and the people you choose can access your health information.

Yes with your consent they can register on your behalf. However, they should not use their own email account to do this. If you want the family member or carer to have access to your record they can be added in the “sharing” section. This will allow them to set up their own account and allow you to control the level of access they have to your record.

We are currently reviewing patient’s information sharing agreements with other healthcare providers and how we will collectively share information digitally. Therefore we have taken the decision to suspend reporting Radiology and Pathology results and reports on the Patients Knows Best (PKB) patient portal.   

Once we have a Humber and North Yorkshire information sharing agreement we will be in a position to reconvene reporting results and clinical correspondence with our patients. 

If you have access to your GP digital records you will be able to view correspondence sent to your GP from the Trust and other Healthcare organisations.

Some patients may not have any information in their records when they first register however this will change over time as you visit the hospital for treatment. 

Please email PKB directly at [email protected] You only need to provide your name, the name of the organisation that created your account (i.e. this hospital) and a summary of the problem(s) you have encountered.

You can email  [email protected] 

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At the NHS Humber Health Partnership, our top priority will always be to provide you and your loved ones with excellent standards of care.

This means ensuring that our clinicians have all the information they need to diagnose and treat you effectively at their fingertips.

While there are already mechanisms in place for sharing information between GPs, hospitals and specialists directly involved in your care, our Partnership – made up of the Hull University Teaching Hospitals NHS Trust (HUTH) and Northern Lincolnshire and Goole NHS Foundation Trust (NLaG) – is continuing to invest in improving and aligning our digital systems to streamline this process.

Most recently, we implemented the same Patient Administration System at NLaG which is already at use in HUTH. This system doesn’t hold clinical records. It’s for storing details such as names, addresses, dates of appointments and referrals.

While this does not mean that all staff at both Trusts have access to all patient records, it does mean it’s easier to share information about patients being treated by both Trusts between those directly involved in their care.

 What does having a combined Patient Administration System mean for patients?

You won’t really see any change in the way we work with you, other than that while our teams get used to using the new system, some things may take a little longer than you’re used to.

What does this mean for my information?

For patients who have been treated at HUTH, your records remain on the same systems as before and have not been transferred or shared to any other systems.

For patients treated at NLaG, your details have been transferred from the previous Patient Administration System (PAS) to the same system in use at HUTH.

Do you need my consent to share my information?

Explicit consent is not needed when sharing personal and clinical information for direct care purposes. The Data Protection Act 2018 reflects this and is supported by the NHS Duty of Confidentiality, which is crucial to maintain your trust when managing your care.

I have received a message from Patients Know Best (PKB) – what did this mean?

If you are registered with PKB to access letters, appointments and – for some services – provide information through surveys and questionnaires, you will have received a letter when NLaG transferred to its new Patient Administration System (PAS). These letters were generated automatically when PKB was connected to the system.

We apologise if this has caused any concerns and would like to reassure you that no members of staff at either Trust have gone into or accessed your patient records as part of this transfer process; and that no patient information from HUTH systems have been shared with anyone or any system at NLaG.